Showing posts with label Prayer in the NICU. Show all posts
Showing posts with label Prayer in the NICU. Show all posts

Monday, April 28, 2014

Lots Of Prayer Requests From The NICU Tonight

Our organization serves a BIG GOD and we know when we petition with prayers for preemies and babies in the NICU He hears us in a BIG way. Our small Preemie Prints community coming together to so often to pray for babies is making a difference. Tonight we had three requests come in at the same time, so instead of posting each on facebook we are putting them all in a blog post to share with you. Please keep all of these precious miracles and their families in your prayers tonight. #prayers #NICU

NICU Prayer Request #1
"My daughter is a one pound miracle. She went into surgery today for inertia hernia and a repair to her stomach (plyoric stenosis). She was one the cpap when going into surgery... now she will be intubated. Can you please pray for Karyssa?"

NICU Prayer Request #2
This one if for one of very own Preemie Prints volunteer photographers, Karina Johnson. She is so special to us and now she's a part of our community. Her son was born full term today with fluid on his lungs. She has not been able to hold him and is hurting. 

"Our baby boy was born at 1:41pm weighing 8Ib 14oz. Pls keep baby Vincent in your prayers he is in the NICU due to fluid in his lungs. It breaks my heart that I wasn't able to hold him and can't see him until later on tonight BUT I know God is in control!"

NICU Prayer Request #3
"I would like to send a prayer request out for my son Kelson. He turned a month old today in the NICU of Children's Hospital of Pittsburg. He has been here since his birth. I had Kelson at 31 weeks and besides him being preemie he was born with a heart condition called TGA known as Tranposition of the Great Arteries. He will be having heart surgery when he is around 38-42 weeks old.With prayers so far Kelson has began full feeds as well as put weight on. At birth he weighed 3 pounds 9 ounces. As of now he weighs 4 pound3ounces. He continues to make progress each day and hopefully within the next two the doctors will be removing his ventilator. I just pray that this does happen on schedule and there is no set backs for Kelson. He is a very strong baby with a very powerfull will to live. I know God has a plan for my Son there is no doubt in my mind. So please pray that Kelsons road to recovery and becoming better is a smooth one with no set backs and he continues his great work of doing what his doctors are wanting him to do.Mommy loves you baby boy and God is on our side 100%."

Thank you for praying for these families and babies. 


Monday, March 10, 2014

Dear NICU Nurse & A Beautiful Baby Poem!

 

Dear NICU Nurse...    "Dear NICU Nurse, To be honest, I never knew you existed. Back when our birth plan included a fat baby, balloons and a two-day celebratory hospital stay, I had never seen you. I had never seen a NICU. Most of the world hasn’t. There may have been a brief, “This is the Neonatal floor” whilst drudging by on a hospital tour. But no one really knows what happens behind those alarm-secured, no-window-gazing, doors of the NICU. Except me. And you.I didn’t know that you would be the one to hold and rock my baby when I wasn’t there.  I didn’t know that you would be the one to take care of him the first 5 months of his life as I sat bedside, watching and wishing that I was you. I didn’t know that you would be the one to hand him to me for the first time, 3 weeks after he was born. That you would know his signals, his faces, and his cries. Sometimes, better than me. I didn’t know you. I didn’t know how intertwined our lives would become. I know you now.  I’ll never be able to think of my child’s life, without thinking of you. I know that in the NICU, you really run things. That your opinions about my baby’s care often dictates the course and direction or treatment as you consult with the neonatologist every day. I know that you don’t hesitate to wake a sometimes sleeping doctor in the nearby call room because my baby’s blood gas number is bad. Or because his color is off. Or because he has had 4 bradys in the last 45 minutes. Or because there’s residual brown gunk in his OG tube.I know now that youare different from other nurses.I know that, at times, you are assigned to just one baby for 12 hours straight. You are assigned to him because he is the most critically sick and medically fragile baby in the unit.  I’ve seen you sit by that baby’s bedside for your entire shift. Working tirelessly to get him comfortable and stable. Forgoing breaks while you mentally will his numbers to improve. I’ve seen you cry with his family when he doesn’t make it. I’ve seen you cry alone.I’ve seen you, in an instant, come together as a team when chaos ensues. And let’s be honest, chaos and NICU are interchangeable words. When the beeper goes off signaling emergency 24 weeker triplets are incoming. When three babies in the same pod are crashing at the same time. When the power goes off and you’re working from generators. In those all too often chaotic moments, you know that time is more critical in this unit than any other, and you don’t waste it. You bond together instantly as a team, methodically resolving the crisis until the normal NICU rhythm is restored. Yes. I know you now.  I’ll never be able to give in return what you have given to me. Thank you for answering my endless questions, even when I had asked them before. Thank you for your skill, you are pretty great at what you do. Thank you for fighting for my baby. Thank you for pretending like it was normal when I handed you a vial of just pumped breast milk. Thank you for agreeing to play Beatles lullabies in my baby’s crib when I was gone. Thank you for waking the doctor. Thank you for texting me pictures of my sweet miracle, even when it was against hospital policy. Thank you for crying with me on the day we were discharged. Most of the world still doesn’t know what you do. They can’t understand how integral you are to the positive outcomes of these babies who started life so critically ill. But I do. I know you now. I will never forget you. In fact, our story can never be told without mentioning you. So the next time you wave your access card to enter the place that few eyes have seen, know that you are appreciated. I know you, and you are pretty amazing."  Your fan forever, A NICU Mom

 We're here praying for preemies, babies, & families in the NICU!  Our next Bryan College Station NICU Family Support Meeting will be held this Friday May 9th from 6:30-8:00 pm at S&W Hospital on the third floor. Please join us if you are a current NICU family looking to connect with past NICU parents! Bryan College Station, TX is home to three neonatal intensive care units (NICU) that offer treatment for premature babies and those born critically ill. We offer support to NICU families in a variety of ways. Please look through our website to find out how or contact us directly.  

Sunday, January 12, 2014

Preemie Prayer Request ~ Prayers For Paisley Grace

Preemie Prints would like to ask you to pray with us for sweet Paisley Grace.

"I am currently 26 weeks pregnant with Paisley. We are experiencing a high risk pregnancy due to absent end diastolic flow in her umbilical cord. We are praying that her cord flow stay stable as long as possible while she grows some more. We are also praying that when it is determined that she must come out, she will be strong enough and have a smooth NICU journey."

Email your preemie and NICU prayer requests to amber@preemieprints.org

Tuesday, December 17, 2013

Offering Support To NICU Families During Christmas

Christmastime is an especially hard time for families to face the NICU journey. It's a time when they long to be home snuggling with their newborn baby and instead the realization of a cold hospital stay rings true. Although they know it's exactly where they need and have to be - every family is longing to be home with their baby. It's a time when bringing warmth to NICU families - even in a small way - is all the more needed.

Christmas In The NICU
A plate of cookies
a cake
a card to show you care
an ornament
an extra prayer
or just a listening ear. 
A handmade item
a photograph
any gesture you can do 
to share your love this Christmas
with someone in the NICU.  



The joy of brightening other lives,
bearing each others' burdens, 
easing others' loads and 
supplanting empty hearts and lives with generous gifts 
becomes for us the magic of Christmas.

Every year we do something special for NICU families. Two years ago we donated special handmade quilts last year we sewed specialty NICU positioners with Christmas fabric and this year we sewed special NICU outfits with Christmas fabric. We also hosted a holiday get together for families, volunteers, and friends. We had an ornament exchange, and shared a festive potluck meal. Together we packaged up all of the Christmas NICU Gift Bundles and got them ready to donate to our three local NICUs. 

Over the next week we dropped off a donation to St. Joseph's Health System, The College Station Medical Center, and Scott & White Healthcare NICUs. We know these special outfits, giraffes, burp cloths, and cards will share hope with families this holiday season. 

Please join Preemie Prints on Thursday December 4th from 6:30-8 for our annual NICU family pot-luck get together at Scott & White Hospital in Bryan College Station.


Christmas donation drop off to St. Joseph's Hospital in Bryan TX

Christmas donation drop off to The College Station Medical Center





My Gift by Alice Porembski

I am a stranger to you now, but let me walk with you for awhile. Because I have been where you are, and where you are about to go.

I have no answers. I offer instead my hand, my heart, my listening ear, my time, and my experience... so that one day, you can turn to another and say:

I am a stranger to you now, but let me walk with you for awhile. Because I have been where you are, and where you are about to go. I have no answers. I offer instead my hand, my heart, my listening ear, my time, and my experience... so that one day you can turn to another and say........






Little Miracle 

As I love you through the glass, the hours seem slow to pass.

I stroke your skin and hold your hand, this isn't exactly what I had planned. 

I cast my eyes up to the sky and say a little prayer...
that the Lord will hold you up in His arms and keep you in His care. 

So sleep and grow my baby, and dream of clouds of foam, and I will love you 
though the glass until you can come home. 




Ashley Diamond Siegert of Fig Mint Photography hosted a picture with Santa even last year. Here are a few adorable pictures of Santa with a few Preemie Prints NICU Graduates!





 Please remember to think about & pray for the families in your local NICU.

If you can offer up a few minutes and do something small for a family know that it will be appreciated. 

If you are a family in the NICU...

We're praying for you. 

Take as many pictures as you can - this is your baby's 1st Christmas  :) 

Take some time for yourself to spend with family

Read The Night Before Christmas to your baby 

..............


Friday, November 8, 2013

Prayer Request: Preemie Quenten ~ 1 lb 13oz

Requesting strong prayers for Miracle Baby Boy Quenten Kelly Jr - born November 6, 2013 at 12:18am in Memorial Hermann Southwest Hospital in Houston, TX - Baby Quenten was born three months early, weighing only one pound thirteen ounces - He was born breathing on his own, eyes wide open, wiggling and fighting strong. We pray he will continue to develope and grow strong daily and that Baby Quenten will be home with us to celebrate the birth of our Lord on Christmas Day - A Grandma filled with hope and trust that all will be well with with Baby Quenten - Thanks for your prayers - Be Blessed!

Monday, November 4, 2013

A Preemie's Journey

A Preemie's Journey

I remember the first time I held you-
I can still feel your soft warm skin.
Your fragile little body was so tiny and so thin.
Thinking about that moment still takes my breath away.
I can’t believe how much time has passed -
It still feels like yesterday.
The commotion all around me -
It was like I couldn’t breathe.

One last time I hold my stomach for in a moment you will leave.
The needle is in -
I close my eyes –
It will be my only relief.
Two pounds two ounces your daddy says as I wake up from my sleep.
They role you in to see us –
And your daddy strokes your hair.

Then a minute later they take you away and we’re left feeling the despair.
Through the night I clutch your pictures –
And ask God for the answer why.
Meanwhile I hold my ears because I can hear another baby cry.

Two days later we drive to Children’s Hospital –
My feeling of intimidation is extreme
As I lay my eyes on the place that keeps you alive –
It looks like the biggest building I’ve ever seen.

For four months the NICU will be your new home.
The clear plastic box you lay in is your new high tech womb.
I’ll never forget that feeling as I look around the room –
Sick babies laying everywhere fills my heart with gloom.

Then your dad points to you –
And to your bed I creep.
Underneath those bright warm lights - so peacefully you sleep.

The nurse hands you to me –
And we lay there skin to skin.
I feel your little body wiggle on mine just like it use to within.

I stroke your head so softly.
You are so tiny and so frail –
But as you snuggle in so tight to me –
I finally exhale.

That moment of relief was fleeting.
The ride had just begun.
For the next four months in circles our lives were going to be spun.

“She needs to gain weight and learn how to eat”.
It seems so cut and dry –
But little did I know that every day she’d give me another reason to cry.

She might me up five grams today –
But tomorrow she’ll be down fifteen.
I just sit there holding my baby tight
As her alarms continue to ring.

Is the needle in her hand today?
Or in her head or in her foot?
So many bruises everywhere
I’m almost too afraid to look.

The worse is yet to come –
A nearly fatal disease they find within.
Thank God they caught it early
Or her prognosis would be grim.

The surgery fixed my baby.
And our angel continued to grow.
Then one Sunday afternoon they said
“Tomorrow she’ll be ready to go.”

That day we walked out of the NICU and never looked back.
Our only reminders of it are the scars that we both have.
The ones on our stomachs –
That the whole world can see.

And the one on my heart that only holding you can ease. 
-------------------------------------------


This is beautiful. I came across this poem and it brought the memories of being in the NICU with my precious twins back vividly. I know the words in this poem will ring true for so many of us. 


Sunday, August 11, 2013

A Preemie Story: The Roller Coaster That Never Ends

Shared with us by:
Valkyrie Schmidt
August 4, 2013

Doctors and parents alike have often been quoted calling the life of a premature baby a roller coaster ride, starting at the crucial moments the baby is born. They say that by the time you are awake and aware enough to know what’s going on, you know in your heart it’s too late to do anything but hang on for the ride. For me, it was well before that; during the time leading up to my daughter’s birth at approximately 26 weeks. She was born because she wasn’t growing in my womb, and I had such severe preeclampsia, both of our heart rates were dropping drastically, and the doctors were afraid I would start seizing.

I was wheeled in to the OR, given the epidural, and an emergency C-section later, my daughter was born. Sadly, I was so heavily medicated I don’t remember most of it. I couldn’t touch my daughter because her skin hadn’t even grown over her, and I was so drugged that I’m told she cried, but I don’t even have that to remember.

Fast forward to the next day. The drugs had started to wear off, and I was wheeled into the NICU for the first time ever. I had to wash my hands in the large, metal sinks, then put on hand sanitizer. When you first open the door to the NICU, you notice it’s very dark, and mostly quiet, save for a few lucky babies who were born strong enough to cry and be in a crib. You smell that so powerful scent of sanitizing chemicals, so thick you can almost taste it burning in the back of your nose and eyes, mingling with the salty tears you’re trying so hard not to shed. You see yourself reflected in the faces of the other parents: the wide, pained eyes; the hurried and distracted pacing, as if just sitting could end your child’s life.



I remember so vividly her little naked shape. She was so very red, even under the iridescent blue of the bilirubin lights; because her skin had not formed. She had what looked like the smallest sunglasses in the world, to shield her still-sealed eyes from that unforgiving light.



As you sit and pray, you hear the constant sounds of the monitors and machines of yours and every other child in the NICU. So often the alarms sounded, and everyone’s heart stopped; praying it wasn’t their child, and that whoever’s alarm it was, they would survive. That’s part of why they call it “the roller coaster ride”, because every child has good days, and bad days. You just had to pray that on those bad days, they still fought to survive, and that you wouldn’t have to suffer the ultimate sorrow.

One of the worst feelings in those first weeks, and maybe longer is that you can’t touch your child, for just to touch would break their paper-thin skins and kill them. You must console yourself to touching the hard plastic of the isolette, or the soft cloth of a receiving blanket and you wear it to leave your scent on it; to place in the isolette for them, to comfort them as the suffer and struggle to survive.

After the draining weeks turn into months, and you have suffered through surgeries, scares, pain, and fear; first you become numb. Then, if you are lucky, you get hope. Hope from the start is what keeps you from falling into despair every time you glance up from your baby to see another’s parents sobbing across the room. Hope is what makes you forge friendships with the parents whose baby is right next to yours. And hope, after those awful months, is what brings your baby home.



My daughter came home 4 and a half months after birth, and I remember as I walked out of the sterile hospital, and into the warm early September breeze, I was terrified, but excited. I could hold her, feel her warmth against me as often as I wanted. I could smell the airy sweetness of her, almost like a doughnut or powdered sugar. I could see her, day and night; wake up and she would be there, breathing so softly in the bassinet next to the bed. It is definitely a roller coaster ride; but it is also the ride of a lifetime.



Thursday, October 25, 2012

Praying Scriptures for Your NICU Baby


Photo by Ryk Neethling
Before I ever was the mother of a micropreemie, I was a born again follower of Christ Jesus. The only thing that kept me going through the difficulties of our two month NICU stay was knowing that a loving and sovereign God had planned this ordeal for His glory and our good. There was a purpose in our pain, and a loving Guide to lead us through it.

The Lord used time spent with Him in His Word and prayer to truly encourage me and steady my heart during our daughter's roller coaster ride beginning. While I love just speaking my heart before the Lord, I've also found praying specific Scripture passages to be a great blessing.

Think about it.

The Bible is God's Word. When you pray His Word, you can know that you are praying words that are honoring to Him- after all, He wrote them!

The Bible reveals God's character. As I read, study, and pray the Bible, I am growing in my understanding of who God is. Because He is good, this is encouraging!

The Bible is chock full of God's promises. He always keeps His Word. As I read, memorize, and pray over these promises, I experience assurance that He will deliver on them.



If you are interested in trying this exercise for yourself, here are a few Scripture passages that I found particularly helpful during our daughter's hospitalization:

Psalm 139:13-18. Praise God for the way He has intricately woven your baby together, first in your womb, and now outside of it. Thank Him for the opportunity to watch His hand at work. Thank Him for forming all of your child's days in His book, long before they took their first breath! Be comforted that He has a plan for them and is in control.

Psalm 71:6. Acknowledge that God brought your baby out of your womb. Thank Him that His timing is perfect, even in preterm delivery. Ask for grace to praise Him continually, even though life is painful right now.

Psalm 71:20. Even though this situation is all consuming and awful, thank God that is is only for a season. Ask Him to revive you again and bring you through!

Psalm 90:16. Ask Him to help you see Him at work. Plead that His glorious power would be displayed in your baby's miraculous life.

Psalm 119:50. Thank Him that He has provided comfort in your affliction. Thank Him for the promise of life to all who believe.

Romans 8:18-30. Praise God that the sufferings of this life don't even compare to the glory of eternity in heaven with Christ! Thank Him for the hope you have in Christ. Praise God that the Spirit intercedes and prays for us when we don't know how to pray. Thank Him that all things work together for good, for those who love God and are called according to His purpose.

Romans 8: 31-39. Thank God that He didn't spare His own Son but gave Him up for us. Thank Him that He graciously gives us all things. Remind yourself that you are more than a conqueror through Him who loved you. Thank God that nothing can separate us from His love in Christ Jesus our Lord.

Philippians 4:4-8. Ask God for help to rejoice in Him always. Ask Him to protect your from anxiety and to guard your heart with His peace. One by one name the things that are making you anxious (an infection, pending surgery, oxygen and apnea issues, whatever!) and make your specific requests for His help. Thank Him for hearing. Ask Him to guard your mind and to help you think only what is true and beneficial.

James 1:2-8. Ask God to help you count this trial as joy. Thank Him that the testing of your faith produces patience and maturity as a Christian. Ask Him to give you wisdom as you seek to care for your baby and make important medical decisions. Thank Him for giving generously and without reproach. Ask Him for faith to believe and not doubt.




These are just a few to get you started. As you read portions of Scripture each day, pray through the passages you're reading. There is great comfort in knowing the God of the Bible. May He guard your heart, guide you through, and grant you peace!

_________________________________________________________________

In addition to prayer support Preemie Prints gives the gift of no-charge NICU or NICU Graduate Photography (up to 1 year of age) please see our program location map to see if we have a volunteer in your area. With over 75 volunteers nationwide we might. We would love to give this gift to you and your family! Visit www.preemieprints.org to learn about all of our programs.

Wednesday, May 9, 2012

What You Can Do: Caring For Your Baby in the NICU

Your baby came too early. Now you are trying to recover, possibly in a drug-induced haze, agonizing over her condition, standing helpless by her bedside. One of the most difficult experiences in the life of a parent is too watch your child suffer, and not be able to do anything about it.

If this is where you're at today, I've been there too. Take heart friend- there are ways that you can help and care for your baby, long before he is able to snuggle in your arms. Here are a few ideas:

1. Be there. Even though you can't hold him, and may feel useless, your presence is of utmost importance. Your baby recognizes your voice from the womb, and hearing you with him will be reassuring in his new scary world. Your presence also communicates your level of concern with the staff, they will know that you care and will seek to better equip and inform you in your NICU journey. It will be vital to your comfort and peace of mind to know as many of your baby's caregivers as well as possible. Lastly, the best way to become as knowledgeable as you can is to be present, asking questions and observing the doctors and nurses.

2. Get on your knees. Run to the LORD for healing and comfort, seek the face of the God who formed your precious baby in your womb and still is holding her in His hands. He knows, He cares, He is at work here. You will have the unique privilege of watching your baby's development week by week, a process normally hidden from human eye. You will see His miracle of life at work in a way that many will never see. Seek Him for grace and strength, find grace in the everlasting arms. In Him you will find the power and grace that you need to walk through this difficult journey.

3. Get rest. While it is important to be there, it is equally urgent to get good rest. You cannot help your baby when you are battling exhaustion and a weakened body; these factors will only add stress and weigh you down. Go home, get some sleep, eat good food. Take care of yourself physically, emotionally, and spiritually.

4. Pump breastmilk. Breastfed preemies flourish on a much higher level then formula fed. When your baby has breastmilk, his chances of developing the dreaded NEC infection are much lower. Your milk will keep his G.I tract healthy, aid in quicker development, and provide him with much needed immunities. Seek out a lactation consultant for help here, if your hospital does not provide one, La Leche League can help you to find one in your area (or at least provide you with some much needed information!). If your milk doesn't come in as quickly as you're told it should, do not stress out! This was a high stress area for me in the first few days of S' life. The sooner you relax, the better off your supply will be. Just follow the advice of your lactation consultant, and try to find a back-up plan if possible. If you really are unable to pump, ask your NICU staff about donor milk. The head doctor of our NICU ordered several ounces from a milk bank just in case, which helped me to relax and did increase my supply.

5. Read up. One of the best things I did in those early days was to purchase a couple of books on prematurity. I found Dr. Sear's The Premature Baby Book and Dr. Jen Gunter's The Preemie Primer to be especially beneficial. As I learned the medical jargon, what it really means, and what we were potentially going to be dealing with, I felt empowered and better prepared to advocate for my daughter.



6. Touch. Depending on how early your baby came, and how stable their condition is, you might not be able to touch or hold them for a long time. Ask the nurses about how you can safely touch your baby. With S, we were told to place a hand on her head and one on her feet and legs (no rubbing or patting as this irritates their fragile skin!) to comfort her, because it made her feel snug and secure like she would have been in my belly. At five days old I was able to kangaroo with her, which was a very healing experience for both of us. If you're unable to kangaroo for weeks or even longer, read about it, tell the doctors that you want to do it as soon as your baby is physically ready, and prepare by bringing a button down shirt to the hospital. When S was several weeks old, one of the Neonatologists really encouraged me by praising her extreme alertness. She explained that this was due to all of the touch and special care S had received from me. Let me tell you, that was a happy day for me in the NICU!

7. Express your desire to be involved, ask what you can do! Most nurses will teach you how to change your baby's diaper, give them a bath, take their temperature. Tell them that you want to do everything that you are allowed to do. They should be very happy to assist you in this way!

Ultimately you are essential to your baby. You may worry that your baby doesn't know you, that they will know their nurses better than their mother; I did. These feelings can be devastating. Rest assured, your baby does know you the best and need you the most! The first time I kangarood with S, her oxygen saturation was excellent, and she cried when they pulled her off of me at the end. It was the first time I felt like her mom; she wanted to stay with me. It was a truly precious moment. At 7 months old one of our favorite NICU nurses came to visit S- S started bawling and looking for mommy the second I handed her to the nurse. You may not feel like the mom right now, but someday soon you will. Never question this!

Do what you can do. At the end of the day, refuse to beat yourself up for what you didn't or couldn't do. Cherish whatever time you are given with your baby. And be sure to thank God for His mercies which are new every morning!


Rachel O'Neill is the proud mama of S, her little girl who came at 27 weeks weighing 1 pound, 15 ounces. She blogs about walking with Jesus, marriage, motherhood and housekeeping at The Purposeful Wife. 

Preemie Prints would like to thank and welcome new guest blogger Rachel! 

Tuesday, May 8, 2012

Poems, Prayers, & Quotes For NICU Parents




A Few Inspirational Poems, Scriptures, and Quotes for you today...



You were born with wings 
wrapped translucent 
around your naked skin 
waiting to unfurl- 
to fly away 
though we ached to have you stay. 

You were born with wings 
so we tethered you with tubes 
IV's and ventilators 
NG tubes and oxygen 
labwork and broviacs 
surgeries and suctioning 
and finally blood... 
so much blood. 

You were born with wings 
and we tried to tear them off 
watching in horror 
the times they opened wide- 
holding tiny hands 
as though we held your soul 
sitting at your side. 

You were born with wings 
but at last you grew strong 
and when your wings slipped off, 
they whispered to the ground 
lost in a pile of cloudy x-rays, 
and we found it wasn't lines that kept you, 
but the hand of God himself.

                      -Elisabeth Snell







The Dirt Road
Cruising along an endless stretch of highway, pavement hard and smooth. 
People staring straight ahead, not taking their eyes off the road.
The lines whisk past as dots that hypnotise, so boring and routine. 
Without challenge, without change and such a waste of time. 
Then suddenly, without warning, a detour sign ahead. 
I turn the wheel, screech and skid, down a dirt road I know not where. 
Stones fly from under my tires as I struggle to gain control.

I must slow down and keep my head, try to stay on course.
Lost, frightened and all alone on some lonesome backwoods road. 
The bumps, ruts, twists and turns, will I ever make it through? 
I take a deep breath, cautiously, progress, for what's ahead I do not know. 
Yet as I go, I start to note the beauty along this road. 
Then here and there I begin to see some others travelling here too. 
They smile and nod with a knowing look, I no longer feel so alone.

There is a kinship here, an understanding too, that sets us apart from the rest. 
Our road has the same destination, just a slightly different route.
We've learned some lessons, gained some skills that could only be learned here. 
This road has taught us how rough life can be, but has made us much stronger indeed. 

Cynthia M. Bissell


 

Dear NICU Nurse...  "Dear NICU Nurse, To be honest, I never knew you existed. Back when our birth plan included a fat baby, balloons and a two-day celebratory hospital stay, I had never seen you. I had never seen a NICU. Most of the world hasn’t. There may have been a brief, “This is the Neonatal floor” whilst drudging by on a hospital tour. But no one really knows what happens behind those alarm-secured, no-window-gazing, doors of the NICU. Except me. And you.I didn’t know that you would be the one to hold and rock my baby when I wasn’t there.  I didn’t know that you would be the one to take care of him the first 5 months of his life as I sat bedside, watching and wishing that I was you. I didn’t know that you would be the one to hand him to me for the first time, 3 weeks after he was born. That you would know his signals, his faces, and his cries. Sometimes, better than me. I didn’t know you. I didn’t know how intertwined our lives would become. I know you now.  I’ll never be able to think of my child’s life, without thinking of you. I know that in the NICU, you really run things. That your opinions about my baby’s care often dictates the course and direction or treatment as you consult with the neonatologist every day. I know that you don’t hesitate to wake a sometimes sleeping doctor in the nearby call room because my baby’s blood gas number is bad. Or because his color is off. Or because he has had 4 bradys in the last 45 minutes. Or because there’s residual brown gunk in his OG tube.I know now that youare different from other nurses.I know that, at times, you are assigned to just one baby for 12 hours straight. You are assigned to him because he is the most critically sick and medically fragile baby in the unit.  I’ve seen you sit by that baby’s bedside for your entire shift. Working tirelessly to get him comfortable and stable. Forgoing breaks while you mentally will his numbers to improve. I’ve seen you cry with his family when he doesn’t make it. I’ve seen you cry alone.I’ve seen you, in an instant, come together as a team when chaos ensues. And let’s be honest, chaos and NICU are interchangeable words. When the beeper goes off signaling emergency 24 weeker triplets are incoming. When three babies in the same pod are crashing at the same time. When the power goes off and you’re working from generators. In those all too often chaotic moments, you know that time is more critical in this unit than any other, and you don’t waste it. You bond together instantly as a team, methodically resolving the crisis until the normal NICU rhythm is restored. Yes. I know you now.  I’ll never be able to give in return what you have given to me. Thank you for answering my endless questions, even when I had asked them before. Thank you for your skill, you are pretty great at what you do. Thank you for fighting for my baby. Thank you for pretending like it was normal when I handed you a vial of just pumped breast milk. Thank you for agreeing to play Beatles lullabies in my baby’s crib when I was gone. Thank you for waking the doctor. Thank you for texting me pictures of my sweet miracle, even when it was against hospital policy. Thank you for crying with me on the day we were discharged. Most of the world still doesn’t know what you do. They can’t understand how integral you are to the positive outcomes of these babies who started life so critically ill. But I do. I know you now. I will never forget you. In fact, our story can never be told without mentioning you. So the next time you wave your access card to enter the place that few eyes have seen, know that you are appreciated. I know you, and you are pretty amazing." Your fan forever, A NICU Mom



Saint Theresa's Prayer
May today there be peace within 
May you trust God that you are exactly where you are meant to be. 
May you not forget the infinite possibilities that are born of faith. 
May you use those gifts that you have received, and pass on the love that has been given to you. 
May you be confident knowing you are a child of God.
Let this presence settle into your bones, and allow your soul the freedom to sing, dance, praise and love. It is there for each and every one of us.