Showing posts with label Chiari Malformation. Show all posts
Showing posts with label Chiari Malformation. Show all posts

Tuesday, November 4, 2014

Little Tripp's NICU Photo Shoot

Please enjoy Preemie Prints' families’ inspirational story & photos. 
Consider supporting our mission to share hope with families who have a baby born prematurely or critically ill. We thank our supporters, Preemie Prints volunteers, and donors for allowing us to continue touching the lives of NICU, preemie, and angel families.


We pray these special memories from Preemie Prints 
will help families heal and remember how strong 
they were in overcoming their NICU journey together.

A NICU STORY | THOUGHTS FROM MOM

“We got the official diagnosis that Tripp had Myelomeningocele Spina Bifida, a Chiari malformation, and club feet when I was 26 weeks along. On top of that, he wouldn't move out of breech position. I was scheduled for a C-section when I was 39 weeks along. Besides from the health issues we knew of before hand, he was a healthy baby boy weighing in at 7lbs 9ozs and measuring 17.5 inches long. He was taken to the NICU at Children's hospital in Minneapolis to prep him for surgery and watch him for breathing issues. The next day he had surgery to repair the sac on his back. He spent the next few nights in the NICU being monitored and having tests run. Six days after he was born, they moved him to the ICC (Infant care center) which is a step down unit because he was going so great. Unfortunately, fluid was collecting around his incision site and in his brain. He was moved back into the NICU and awaited another surgery to put a ventriculoperitoneal shunt (or VP shunt) in place. That surgery went great and he was monitored a couple of more days in the NICU before we were discharged after a total of 15 days in there. We had some pretty amazing nurses that really advocated for Tripp and made sure that my husband and I knew what was going on and we were also being taken care of. We have weekly appointments to check Tripp's progress, and are proud to report that he is doing good.”




A Note From Lindsey:

"This morning I had the pleasure of meeting the Buesgens' family and doing Tripp’s NICU graduate photo session. The shoot went wonderfully. Mom had the house toasty warm and ready for baby to be comfortable while having his pictures taken! Big sister was such a HAM! and was a joy to work with as well! This family’s love and closeness was a delight!"





Photos belong to our volunteer photographers, families, 
and organization please do not use for any purpose. 
____________________________________________

Preemie Prints is a 501(c)(3) nonprofit organization sharing hope with NICU families through a variety of support programs. One of those programs is the gift of NICU photography and preemie photography. NICU families from across the US can request a no-charge photography session by a Preemie Prints volunteer. The family request from can be found on the right side of our website. These sessions are free of charge and for any NICU family, regardless of time spent in the NICU. The NICU photo shoot can take place inside the NICU or after baby is discharged and at home until their 1st birthday. Facing time in a NICU with a premature or critically ill baby is an extremely difficult time for families. Preemie Prints has a mission to share hope by letting families know they are not alone. Preemie Prints currently has over 100 volunteers nationwide. We are always looking for more volunteers to share in our mission! If you are interested, please email sherri@preemieprints.org and visit our website at www.preemieprints.org. To date Preemie Prints and our volunteers have gifted over 400 NICU family sessions. 

This was a Preemie Prints NICU graduate photography session that took place near Waconia, MN
We're thankful to the family for sharing their story & memories in support of other NICU families.


Wednesday, July 2, 2014

Baby Jake's Preemie Prints NICU Grad Photo Shoot

Please enjoy Preemie Prints' families inspirational story & photos. Consider supporting our mission to share hope with families who have a baby born prematurely or critically ill. We thank our supporters, Preemie Prints volunteers, and donors for allowing us to continue touching the lives of NICU, preemie, and angel families.


We pray these special memories from Preemie Prints 
will help families heal and remember how strong 
they were in overcoming their NICU journey together.


A NICU STORY | THOUGHTS FROM MOM
"My son's name is Jake Casey. He was born 3/25/14 on a Tuesday at 2:48PM and was 8lbs 10ozs. He was born in the SDU at CHOP. Jake was born with Spina Bifida and fluid on the brain. He had his back repaired the day after birth and a VP shunt plance 2 days later. He was in the NICU a week and a half and discharged. We had to catherize him and were sent home with an NG tube. He was home for a week and was admitted to Staten Island Hospital and vented to 7 days. Jake had aspirated and got pnumonia. He was transferred back to CHOP in the NICU where they tapped his shunt to test for infection. He was put on oxygen. My fiance and I opted to have a Gtub and nissen surgery, because we wanted Jake to be safe while trying to feed. While under for that surgery they found his bocal cords were completely closed. We were faced with another surgery for his Chiari Malformation. If we didn't do the surgery Jake would die. He is still int he hospital and jake is vented again hoping to come of it soon. He is doing well."

UPDATE: Jake is home now and doing well. :)


Preemie Prints Volunteer Photographer:
Senshi Lion, Senshi Photography - Brooklyn, NY





A note from Senshi-
"Upon meeting this family, you cannot help but smile. They are such happy people and their boys are adorable! Photographing them was such a pleasure. They had easy smiles and so much love to pour into their shots. I truly enjoyed getting to know Melissa better and was grateful to her for sharing baby Jake's story. This little boy is in great hands with such wonderful loving parents- even his brother Jack who is two is gentle with baby Jake! I hope you enjoy these photos as much as I do!"








Photos belong to our volunteer photographers, families, 
and organization please do not use for any purpose. 
____________________________________________

Preemie Prints is a 501(c)(3) nonprofit organization sharing hope with NICU families through a variety of support programs. One of those programs is the gift of NICU photography and preemie photography. NICU families from across the US can request a no-charge photography session by a Preemie Prints volunteer. The family request from can be found on the right side of our website. These sessions are free of charge and for any NICU family, regardless of time spent in the NICU. The NICU photo shoot can take place inside the NICU or after baby is discharged and at home until their 1st birthday. Facing time in a NICU with a premature or critically ill baby is an extremely difficult time for families. Preemie Prints has a mission to share hope by letting families know they are not alone. Preemie Prints currently has over 100 volunteers nationwide. We are always looking for more volunteers to share in our mission! If you are interested, please email sherri@preemieprints.org and visit our website at www.preemieprints.org. To date Preemie Prints and our volunteers have gifted over 400 NICU family sessions. 

This was a Preemie Prints NICU graduate photography session that took place near Brooklyn, NY.
We're thankful to the family for sharing their story & memories in support of other NICU families.