Please enjoy Preemie Prints' families’
inspirational story & photos.
Consider supporting our mission to share hope with families
who have a baby born prematurely or critically ill. We thank our
supporters, Preemie Prints volunteers, and donors for allowing us to continue
touching the lives of NICU, preemie, and angel families.
We pray these special memories from Preemie Prints
will help families heal and remember how strong
they were in overcoming their NICU journey together.
A
NICU STORY | THOUGHTS FROM MOM
“William George was born at 38.1 weeks on Dec 29, 2013. We were in
induction for over 48hours. That's when the doctors realized they couldn't wait
any longer because his heart rate was dropping. When they took him out his eyes
were wide open but he wouldn't cry. Then after a few minutes he let out this
littlest cry ever and we knew he was going to be okay.
I think the biggest thing that we didn't learn till right before
we left (the NICU) was that we are our child’s biggest advocate. They can't
help themselves; we need to be able to tell the doctors that something needs to
be changed in their care. We also lived two hours away from where our baby was
staying and there was no support given to us. We were never told about The Ronald
McDonalds house and other places that would help us with our commute. We didn't
find out any of this till after we left and did a follow up appointment. We are
first time parents and we didn't know what questions to ask but there wasn't
the support of a social worker for us.
Our son was born and he actually stopped growing at 34 weeks. We
were told he could have Down Syndrome or some type of dwarfism. We took the
information and got educated on it, because we didn't want to do any type of
testing because of the risk to the baby. Will was born and taken straight to
the NICU because he was small and he didn't breath right away. Within a couple
of hours a genetics team came and clinically diagnosed Will with Cornelia De
Lang Syndrome, it's a very rare genetic mutation. Will had a hard time feeding,
and had a feeding tube put in his nose. The NICU was very forceful with how
much he had to eat. We knew he would never eat like a "typical" baby
and he still doesn't. He needed time to grow and the doctors weren't listening
to that. No one there had a patient with this syndrome before and my husband
and I felt like he was being treated as a science experiment. Running a lot of
test because they wanted to see if they could find anything else going on with
him. We finally took his care into our own hands and told the doctors he needs
to go home to thrive. We were out of there a couple days later. The nurses in
the NICU were amazing! The doctors weren't the greatest, which was really
upsetting for us.”
A Note From Phaedra:
“William was an adorably happy baby. He was very
talkative and loved playing with the ornaments! My favorite part of the session
was when William warmed up to the camera and began playing with his tongue. It
was such a blessing being able to capture these moments for this family. Thank
you so much for letting me be a part of this!”
and organization
please do not use for any purpose.
____________________________________________
Preemie Prints is a 501(c)(3) nonprofit
organization sharing hope with NICU families through a variety of support
programs. One of those programs is the gift of NICU photography and preemie
photography. NICU families from across the US can request a no-charge
photography session by a Preemie Prints volunteer. The family request from can
be found on the right side of our website. These sessions are free of charge
and for any NICU family, regardless of time spent in the NICU. The NICU photo
shoot can take place inside the NICU or after baby is discharged and at home
until their 1st birthday. Facing time in a NICU with a premature or critically
ill baby is an extremely difficult time for families. Preemie Prints has a
mission to share hope by letting families know they are not alone. Preemie
Prints currently has over 100 volunteers nationwide. We are always looking for
more volunteers to share in our mission! If you are interested, please
email sherri@preemieprints.org and visit our website at www.preemieprints.org.
To date Preemie Prints and our volunteers have gifted over 400 NICU family
sessions.
This was a Preemie Prints NICU graduate
photography session that took place near Orlando, FL.
We're thankful to the family for sharing their
story & memories in support of other NICU families.
No comments:
Post a Comment